STRONGLIKEELLIE.ORG PRIVACY POLICY Updated July 2025
The Strong Like Ellie Foundation ("we," "us," or "our") recognizes the importance of protecting the privacy of your personal information, and we have prepared this Privacy Policy to provide you with important information about the privacy practices applicable to our website StrongLikeEllie.org, including any website or service that links to or refers to this Privacy Policy (collectively, the "Site").
INFORMATION WE COLLECT
We may collect the following kinds of information when you use the Site:
Information you provide directly to us. For certain activities, such as when you make a donation, visit our Site, subscribe to our mailing list, or contact us directly, we may collect some or all of the following types of information:
· Contact information, such as your full name, email address, mobile phone number, and address;
· Other identifying information you provide;
· Your location;
· Images or videos you might choose to share; and
· Any other information you provide to us.
We may combine such information with information we already have about you.
Information we collect automatically. We may collect certain information automatically when you use our Site, such as your Internet protocol (IP) address, device and advertising identifiers, browser type, operating system, Internet service provider, pages that you visit before and after using the Site, the date and time of your visit, information about the links you click and pages you view within the Site, and other standard server log information. We may also automatically collect technical information (such as time zone setting and location, and other technology on the devices) used to access the Site. We may also use other automatic technologies such as web server logs, pixels and web beacons. We may also collect certain location information when you use our Site, such as your mobile device's GPS signal, or information about nearby WiFi access points and cell towers. Please refer to our Cookie Notice for more details about our use of cookies and other tracking mechanisms.
We may also receive information about you from other sources, including through third-party Site and organizations. We may combine our first-party data, such as your email address or name, with third-party data from other sources and use this to contact you (e.g. through direct mail). For example, if you access third-party Site, such as Facebook, Google, or Twitter, through the Site to log into the Site or to share information about your experience on the Site with others, we may collect information from these third-party Site.
HOW WE USE YOUR INFORMATION
We generally use the information we collect online to:
· Provide and improve the Site;
· Contact you;
· Fulfill your requests for Site and information;
· Send you information about us or on behalf of our affiliates and trusted third-party partners;
· Analyze the use of the Site and user data to understand and improve the Site;
· Customize the content you see when you use the Site;
· Prevent potentially prohibited or illegal activities;
· To protect our rights and the rights of other users;
· For any other purposes disclosed to you at the time we collect your information or pursuant to your consent.
HOW WE SHARE YOUR INFORMATION
We are committed to maintaining your trust, and we want you to understand when and with whom we may share the information we collect.
· Authorized third-party vendors and service providers. We may share your information with third-party vendors and service-providers that help us with specialized Site, including payment processing (if you make a donation), customer service, email deployment, business analytics, marketing (including but not limited to advertising, attribution, deep-linking, direct-mail, mobile marketing, optimization and retargeting), performance monitoring, hosting, and data processing. These third-party vendors and service providers are not allowed to use your information for purposes other than those related to the Site they are providing to us.
· Business transfers. We may share your information in connection with a substantial corporate transaction, such as a merger, consolidation, asset sale, or in the unlikely event of bankruptcy.
· Legal purposes. We may disclose information to respond to subpoenas, court orders, legal process, law enforcement requests, legal claims or government inquiries, and to protect and defend the rights, interests, health, safety, and security of the Strong Like Ellie Foundation, StrongLikeEllie.org, users, or the public. If we are legally compelled to disclose information about you to a third party, we will attempt to notify you by sending an email to the email address in our records unless doing so would violate the law or unless you have not provided your email address to us.
· With your consent or at your direction. We may share information for any other purposes disclosed to you at the time we collect the information or pursuant to your consent or direction.
If you access third-party Site, such as Facebook, Google, or Twitter, through the Site to login to the Site or to share information about your experience on the Site with others, these third-party Site may be able to collect information about you, including information about your activity on the Site, and they may notify your connections on the third-party Site about your use of the Site, in accordance with their own privacy policies.
If you choose to engage in public activities on the Site or third party Site that we link to, you should be aware that any information you share there can be read, collected, or used by other users of these areas. You should use caution in disclosing personal information while participating in these areas. We are not responsible for the information you choose to submit in these public areas.
Information you submit may be received, maintained, or transmitted on our systems or those of contractors, third parties, or affiliates, including offshore or overseas locations.
NOTE: The Site are intended for use in the United States only by users over the age of 18. If you access this Site from outside the United States, if you choose to provide Personal Information, you do so on your own initiative and at your own risk and are responsible for compliance with all applicable laws and regulations.
SECURITY
The security of your personal information is important to us. We take a number of organizational, technical, and physical measures designed to protect the personal information we collect, both during transmission and once we receive it. However, no security safeguards are 100% secure and we cannot guarantee the security of your information. We have implemented procedures to deal with any suspected data breach and will notify you and any applicable regulator of a breach where we are legally required to do so.
How Long We Keep Your Information
We will keep your information for as long as reasonably necessary for the purposes described in this Privacy Policy, while we have a legitimate business need to do so, or as required by law (e.g. for regulatory reporting including to government entities who may oversee the safety and efficacy of research, legal, tax, accounting or other purposes), whichever is longer.
To determine the appropriate retention period for your information, we will consider the amount, nature, and sensitivity of the information, the potential risk of harm from unauthorized use or disclosure of your information, the purposes for which we use your information, and whether we can achieve those purposes through other means, and the applicable legal requirements.
YOUR RIGHTS
Your local laws may permit you to request that we:
· provide access to and/or a copy of certain information we hold about you;
· prevent the processing of your information for direct-marketing purposes (including any direct marketing processing based on profiling);
· update or rectify information which is out of date or incorrect;
· delete certain information which we are holding about you;
· oppose, cancel, or restrict the way that we process and disclose certain information;
· revoke your consent for the processing of your information.
We will consider all requests and provide our response within the time period stated by applicable law. Please note, however, that certain information may be exempt from such requests in some circumstances, which may include if we need to keep processing your information for our legitimate interests, to comply with a legal obligation. We may request you provide us with information necessary to confirm your identity before responding to your request as required or permitted by applicable law. If you would like further information in relation to your legal rights under applicable law, or would like to exercise those rights, please email emilybottone@stronglikeellie.org. Please be sure to include your name, address (including the state where you reside), and email address so we can respond to your request in the time frame required under your state’s laws.
THIRD-PARTY ADVERTISING, LINKS, AND CONTENT
Some of the Site may contain links to content maintained by third parties that we do not control.
Some third parties collect information about users of our Site to provide interest-based advertising on our Site and elsewhere, including across browsers and devices. These third parties may use the information they collect on our Site to make predictions about your interests in order to provide you ads (from us and other companies) across the internet. Some of these third parties may participate in an industry organization that gives users the opportunity to opt out of receiving ads that are tailored based on your online activities. Due to differences between using apps and websites on mobile devices, you may need to take additional steps to disable targeted ad technologies in mobile apps.
Many mobile devices allow you to opt out of targeted advertising for mobile apps using the settings within the mobile app or your mobile device. For more information, please check your mobile settings. You also may uninstall our apps using the standard uninstall process available on your mobile device or app marketplace.
To opt out of interest-based advertising across browsers and devices from companies that participate in the Digital Advertising Alliance or Network Advertising Initiative opt-out programs, please visit their respective websites. You may also be able to opt out of interest-based advertising through the settings within the mobile app or your mobile device, but your opt-out choice may apply only to the browser or device you are using when you opt out, so you should opt out on each of your browsers and devices if you want to disable all cross-device linking for interest-based advertising. If you opt out, you will still receive ads but they may not be as relevant to you and your interests, and your experience on our Site may be degraded.
CHILDREN
We do not knowingly allow individuals under the age of 18 to create accounts that allow access to our Site. If we learn that we have collected personal information directly from a child under the age of 13 through our Site, we will take reasonable steps to delete that information as soon as practicable. If you believe someone under the age of 13 has provided us with personal information, please email emilybottone@stronglikeellie.org.
CHANGES TO THE PRIVACY POLICY
We may update this Privacy Policy from time to time. When we update the Privacy Policy, we will revise the "Effective Date" date above and post the new Privacy Policy. We recommend that you review the Privacy Policy each time you visit the Site to stay informed of our privacy practices. If we make material changes to this Privacy Policy, we will notify you by email or through the Site as required.
QUESTIONS?
If you have any questions or concerns about our Privacy Policy, or if you wish to submit a data subject access, deletion, or opt-out request according to the state law where you reside, please contact our privacy officer at emilybottone@stronglikeellie.org. Please be sure to include your name, address (including the state where you reside), and email address so we can respond to your request in the time frame required under your state’s laws.
COOKIE NOTICE
We use cookies to collect information about your browsing activities over time and across different website following your use of our Site. They allow us to recognize and count the number of users, to see how users move around the Site when they are using it and assess our internal performance and functionality needs. This helps us to improve the Site we provide to you and the way the Site works. You can find more information about cookies and how to manage them at http://www.allaboutcookies.org/.
In addition to cookies that are “strictly necessary” which are required for the proper operation of our Site, we may use the following cookies:
Functionality cookies: these cookies record information about choices you’ve made and allow us to tailor our Site to you. These cookies mean that when you continue to use or come back to our Site, we can provide you with our Site as you have asked for them to be provided.
These cookies allow us to:
· Save your location preference if you have set your location on your homepage;
· Remember settings you have applied, such as layout, text size, preferences, and colors;
· Show you when you are logged in; and
· Store accessibility options.
Performance and Analytics cookies: these cookies help us analyze how our Site are accessed, used, or are performing in order to provide you with a better user experience and to maintain, operate and continually improve our Site. They allow us to count visitors and traffic to our Site. All information collected from analytic cookies is aggregated so it is not identifiable.
These cookies allow us to:
· Better understand our Site visitors so that we can improve how we present our content;
· Test different design ideas for pages, such as our homepage;
· Collect information about visitors of our Site such as where they are located and what browsers they are using;
· Determine the number of unique users of our Site;
· Improve our Site by measuring any errors that occur; and
· Conduct research and diagnostics to improve product offerings.
Marketing: We do not currently use marketing cookies or pixels.
You may opt-out of functionality cookies and performance cookies at any time by clicking the “Manage Cookies” link at the bottom of the page. You can then adjust the available sliders to “On” or “Off,” then clicking “close”.
Alternatively, you can change your preferences by changing the settings in your browser. Most browsers will allow you to choose the level of privacy settings you want. This lets you control your cookie settings so that you can:
· See what cookies or other locally stored data you’ve got and delete them on an individual basis;
· Block third party cookies or similar technology;
· Block cookies or similar technology from websites;
· Block all cookies or similar technologies from being set; or
· Delete all cookies or similar technologies when you close your browser.
For more information on how to manage the most popular browsers, please see below: